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Research priorities in children and adults with congenital heart disease: a James Lind Alliance Priority Setting Partnership.

Nigel E DruryClare P HerdGiovanni BiglinoKatherine L BrownLouise CoatsMichael J CumperRafael R GuerreroAlex MiskinSarah MurrayFraser PenderSasha RoopraiJohn M SimpsonJohn D R ThomsonJara WeinkaufJulie WoottonTimothy J JonesKatherine Cowan
Published in: Open heart (2023)
Through an established and equitable process, we determined national clinical priorities for congenital heart disease research. These will be taken forward by specific working groups, a national patient and public involvement group, and through the establishment of a UK and Ireland network for collaborative, multicentre clinical trials in congenital heart disease.
Keyphrases
  • congenital heart disease
  • quality improvement
  • clinical trial
  • cross sectional
  • young adults
  • case report
  • study protocol
  • mental health
  • phase ii
  • emergency department
  • randomized controlled trial
  • double blind