Parents' expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial.
Brittany C McGillClaire E WakefieldKatherine M TuckerRebecca A DalyMark W DonoghoeJanine VetschMeera WarbyNoemi A Fuentes-BolanosKristine Barlow-StewartJudy KirkEliza CourtneyTracey A O'BrienGlenn M MarshallMark PineseMark J CowleyVanessa TyrrellRebecca J DeyellDavid S ZieglerKate HetheringtonPublished in: Cancer (2023)
Many parents of children with poor-prognosis childhood cancer enrolled in a precision medicine trial expect their child may have an underlying cancer predisposition syndrome. They wish to receive a wide scope of information from germline genome sequencing but may feel confused by the reporting of trial results.