Palliative care for children with complex cardiac conditions: survey results.
Sidharth VemuriAshleigh E ButlerKatherine L BrownJo WrayMyra Bluebond-LangnerPublished in: Archives of disease in childhood (2021)
Components of palliative care, such as advance care planning, can be provided by cardiac care professionals alongside the disease-directed care of children with complex cardiac conditions. Further research and training are needed to address confidence levels in cardiac care professionals in delivering components of palliative care as well as clarification of professional roles and parent preferences in delivery of family-centred care for children with complex cardiac conditions.