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Patients' and caregivers' perception of multidimensional and palliative care in amyotrophic lateral sclerosis - protocol of a German multicentre study.

Katharina LinseConstanze WeberPeter ReilichFlorian SchöberlMatthias BoentertSusanne PetriAnnekathrin RödigerAndreas PosaMarkus OttoJoachim WolfDaniel ZellerRobert BrunkhorstJan KochAndreas HermannJulian GroßkreutzCarsten SchröterMartin GroßPaul LingorGerrit MachetanzLuisa SemmlerJohannes DorstDorothée LuléAlbert LudolphThomas MeyerAndré MaierMoritz MetelmannMartin RegensburgerJürgen WinklerBerthold SchrankZacharias KohlTim HagenackerSvenja BrakemeierUte WeyenMarkus WeilerStefan LorenzlSarah BublitzPatrick WeydtTorsten GrehlSylvia KotterbaHanna-Sophie LappMaren FreigangMaximilian VidovicElisa AustRené Günther
Published in: Neurological research and practice (2024)
The study is registered at ClinicalTrails.gov; NCT06418646.
Keyphrases
  • palliative care
  • end stage renal disease
  • newly diagnosed
  • chronic kidney disease
  • randomized controlled trial
  • advanced cancer
  • peritoneal dialysis
  • prognostic factors