Co-design of patient information leaflets for germline predisposition to cancer: recommendations for clinical practice from the UK Cancer Genetics Group (UKCGG), Cancer Research UK (CRUK) funded CanGene-CanVar Programme and the Association of Genetic Nurse Counsellors (AGNC).

Kelly KohutBeverley SpeightJulie YoungRosalind WayJennifer WigginsLaura Monje-GarciaDiana M EcclesClaire FosterLesley TurnerKatie SnapeHelen Hansonnull nullnull null

Published in: Journal of medical genetics (2023)

Recommendations from the meeting are likely to be applicable for PIL co-design for a wide range of germline genetic testing scenarios.

Keyphrases

papillary thyroid
clinical practice
squamous cell
primary care
dna repair
healthcare
lymph node metastasis
cross sectional
climate change
gene expression
childhood cancer
clinical trial
randomized controlled trial
case report
dna damage
oxidative stress
genome wide
health information