Developing a UK registry to investigate the role of cardiovascular magnetic resonance (CMR) in patients who activate the primary percutaneous coronary intervention (PPCI) pathway: a multicentre, feasibility study linking routinely collected electronic patient data.
Rachel C BrierleyMaria PufuleteJessica HarrisChiara Bucciarelli-DucciJohn P GreenwoodStephen DormanRichard AndersonChris A RogersBarnaby C ReevesPublished in: BMJ open (2018)
We successfully consented patients but obtaining individual, opt-in consent would not be feasible for a national registry. Linkage of data from HIS with hospital episode data was feasible. However, data from HIS are not uniformly available/exportable and, in centres with a dedicated CMR facility, some referrals for CMR were for research rather than clinical purposes.
Keyphrases
- electronic health record
- magnetic resonance
- percutaneous coronary intervention
- big data
- end stage renal disease
- healthcare
- newly diagnosed
- chronic kidney disease
- ejection fraction
- coronary artery disease
- randomized controlled trial
- cross sectional
- prognostic factors
- case report
- emergency department
- heart failure
- peritoneal dialysis
- genome wide
- study protocol
- computed tomography
- patient reported outcomes
- quality improvement
- human immunodeficiency virus
- antiplatelet therapy
- long term care