A patient-focused survey to assess the effects of the COVID-19 pandemic and social guidelines on people with muscular dystrophy.
Katy EichingerLeann LewisNuran DilekKiley HiggsMichaela WalkerDavid PalmerJohn M CooleyNicholas E JohnsonRabi TawilJeffrey M StatlandPublished in: Muscle & nerve (2021)
People with muscular dystrophy reported moderate stress and challenges during the COVID-19 pandemic. Interventions such as exercise and stress-coping strategies, including strategies specific to women or individuals <30 y, may be important. Further investigation is needed into the role of telemedicine in the care of individuals with muscular dystrophy.
Keyphrases
- muscular dystrophy
- healthcare
- high intensity
- duchenne muscular dystrophy
- physical activity
- polycystic ovary syndrome
- palliative care
- depressive symptoms
- stress induced
- case report
- mental health
- social support
- cross sectional
- clinical practice
- pain management
- quality improvement
- type diabetes
- pregnant women
- heat stress
- cervical cancer screening
- chronic pain