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Patient, Parent, and Oncologist Perspectives and Recommendations on the Right Way to Talk About Prognosis in Advanced Childhood Cancer.

Erica C KayeHarmony FarnerShoshana MehlerKelly BienNidhi MaliTara M BrinkmanJustin N BakerPamela S HindsJennifer W Mack
Published in: JCO oncology practice (2024)
Pediatric cancer shareholders advocated for diverse, and sometimes conflicting, approaches for prognostic disclosure. Although nearly all participants endorsed the importance of individualized prognostic disclosure, specific strategies to encourage or facilitate person-centered prognostic conversation are lacking. Future research will focus on collaboration with pediatric patients, parents, and oncologists to codesign a clinical intervention to improve prognostic communication for children with advanced cancer and their families.
Keyphrases
  • childhood cancer
  • advanced cancer
  • palliative care
  • young adults
  • randomized controlled trial
  • papillary thyroid
  • current status