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Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's research involvement group and expert item generation.

Lucy CoombesDaney HarðardóttirDebbie BraybrookHannah May ScottKatherine BristoweClare Ellis-SmithLorna Katherine FraserJulia DowningMyra Bluebond-LangnerFliss E M MurtaghRichard Harding
Published in: Palliative medicine (2023)
This study highlights the importance and feasibility of involving key stakeholders in PROM item generation, as important differences were found in the priority outcomes identified by children, parents and professionals.
Keyphrases
  • palliative care
  • young adults
  • intensive care unit
  • clinical practice
  • social media
  • cross sectional
  • psychometric properties
  • advanced cancer
  • type diabetes
  • adipose tissue
  • metabolic syndrome
  • insulin resistance