Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives.
Claire E WakefieldKate HetheringtonEden G RobertsonMark W DonoghoeJacqueline D HunterJanine VetschJonathan Michael MarronKatherine M TuckerGlenn M MarshallAlexander BroomMichelle HaberVanessa TyrrellDavid MalkinLoretta M S LauMarion K MateosTracey A O'BrienDavid S ZieglerPublished in: British journal of cancer (2023)
Even when trial outcomes did not match their hopes, parents and patients rarely regretted participating in a childhood cancer precision medicine trial. These data are critical for integrating participants' views into future precision medicine delivery.
Keyphrases
- childhood cancer
- phase iii
- young adults
- study protocol
- phase ii
- end stage renal disease
- clinical trial
- newly diagnosed
- chronic kidney disease
- randomized controlled trial
- open label
- prognostic factors
- peritoneal dialysis
- type diabetes
- machine learning
- electronic health record
- adipose tissue
- big data
- current status
- artificial intelligence