Culture in the spotlight-cultural adaptation and content validity of the integrated palliative care outcome scale for dementia: A cognitive interview study.
Farina HodiamontHelena HockClare Ellis-SmithCatherine J EvansSusanne de Wolf-LinderSaskia JüngerJanine Diehl-SchmidIsabel Burner-FritschClaudia BauseweinPublished in: Palliative medicine (2021)
Most issues of cultural adaptation could be addressed by questionnaire modifications. However, interviews unveiled fundamental challenges for using proxy reported person-centered assessments. Continuous training on how to use the instrument is imperative to integrate the person-centered approach of palliative care into nursing homes as a key provider of generalist palliative care for people with dementia. The refined version is ready for psychometric testing.