Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes set.

Erna C van BalenBrian O'MahonyMarjon H CnossenGerard DolanVictor S BlanchetteKathelijn FischerDeborah GueJamie O'HaraAlfonso IorioShannon JacksonBarbara A KonkleDiane J NugentDonna CoffinMark W SkinnerCees SmitAlok SrivastavaFred van EenennaamJohanna G van der BomSamantha C Gouw

Published in: Research and practice in thrombosis and haemostasis (2021)

A consensus-based international set of health outcomes relevant to all persons with hemophilia, and corresponding measurement instruments, was identified for use in clinical care to facilitate harmonized longitudinal monitoring and comparison of outcomes.

Keyphrases

healthcare
palliative care
quality improvement
pain management
case report
affordable care act
type diabetes
cross sectional
chronic pain
insulin resistance
health insurance