The development of lived experience-centered word clouds to support research uncertainty gathering in degenerative cervical myelopathy: results from an engagement process and protocol for their evaluation, via a nested randomized controlled trial.
Benjamin M DaviesOliver D MowforthDanyal Zaman KhanXiaoyu YangSybil R L StacpooleOlesja HazenbillerToto GronlundLindsay TetreaultSukhvinder Kalsi-RyanMichelle L StarkeyIwan SadlerEllen SarewitzDelphine HoultonJulia CarterEvangeline HowardVafa Rahimi-MovagharJames D GuestBizhan AarabiBrian K KwonShekar N KurpadJames HarropJefferson R WilsonRobert GrossmanEmma K SmithAngus G K McNairMichael G FehlingsMark R N KotterPublished in: Trials (2021)
We have shown it is feasible to work with PwCM to generate a tool for the AO Spine RECODE-DCM nested methodological study. Once the survey stage is completed, we will be able to evaluate the impact of the word clouds. Further research will be needed to assess the value of any impact in terms of stimulating a more creative research agenda.