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Documenting the untold histories of late-diagnosed autistic adults: a qualitative study protocol using oral history methodology.

Elizabeth PellicanoWenn LawsonGabrielle HallJoanne MahonyRozanna LilleyCatherine DavisSamuel R C ArnoldJulian N TrollorMichael Yudell
Published in: BMJ open (2020)
The protocol has received institutional research ethics approval from Macquarie University's Human Research Ethics Committee (Ref.: 52019556310562). This study will yield understanding of the life experiences of autistic adults, especially middle-aged and older Australians, should inform more effective diagnostic practices and provide insight into the key factors that might promote resilience and enhance quality of life in autistic people. The findings will be disseminated to academic and clinical audiences through journal articles and conference presentations and to the autistic and autism communities through accessible reports. The interviews will also be prepared for digital archiving, which will enable ongoing access for future generations and communities.
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