Latin American Cerebral Palsy Register (LATAM-CPR): study protocol to develop a collaborative register with surveillance of children with cerebral palsy in Latin American countries.
María de Las Mercedes Ruiz BrunnerIsrat JahanEduardo CuestasMaria Elisabeth CieriJohana Escobar ZuluagaAna Laura CondinanziFederico SanchezSarah McIntyreHayley Smithers-SheedyMohammad MuhitNadia BadawiRaul DíazAgripina DiazJorge CarranzaClaudia DuránCarlos Alberto Quintero ValenciaMariana MelaragnoGulam KhandakerPublished in: BMJ open (2023)
Individual CP registers have applied ethics approval from respective national human research ethics committees (HREC) and/or institutional review boards prior to the establishment and inclusion into the LATAM-CPR. Ethical approval for LATAM-CPR has already been obtained from the HREC in the two countries that started (Argentina and Mexico). Findings will be disseminated and will be made publicly available through peer-reviewed publications, conference presentations and social media communications.
Keyphrases
- social media
- cardiac arrest
- cardiopulmonary resuscitation
- cerebral palsy
- children with cerebral palsy
- public health
- study protocol
- quality improvement
- health information
- endothelial cells
- randomized controlled trial
- big data
- drug administration
- global health
- clinical trial
- induced pluripotent stem cells
- pluripotent stem cells