Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance.
Isolde A R KuijlaarsLorynn TeelaLize F D van VulpenMerel A TimmerMichiel CoppensSamantha C GouwMarjolein PetersMarieke J H A KruipMarjon H CnossenJelmer J MuisEvelien S van HoornLotte HavermanKathelijn FischerPublished in: Research and practice in thrombosis and haemostasis (2021)
The PROMIS CATs physical function, pain interference, satisfaction with social roles and activities, and fatigue are feasible, reliable, and valid alternatives to legacy instruments for patients with hemophilia, with few items and low floor-/ceiling effects.