Difficulties Experienced by Turkish Parents With Children in Pediatric Palliative Care: An Exploratory Qualitative Study.
Tülay Kuzlu AyyildizAylin KurtAysel TopanHülya Kulakçı AltıntaşFunda VerenFadime Üstüner TopPublished in: Omega (2022)
We aimed to identify the difficulties of the parents of pediatric palliative care patients and how they cope with these problems in this qualitative study in Turkey. This study was carried out with 20 parents by in-depth interviews. Content analysis was used for data analysis. Four themes were identified: The problems in the process of acceptance, the difficulties of being at the hospital, the expectations from the health staff, the coping strategies. The families had difficulties in coping with the end-of-life of their children. Future researches may focus on the effectiveness of family-centered care and the experience of parents with its implementation. The findings suggest that social support resources and coping strategies can play an important role in the acceptance of the child's disease process and maintenance of palliative care effectively.
Keyphrases
- palliative care
- social support
- depressive symptoms
- mental health
- advanced cancer
- data analysis
- healthcare
- young adults
- end stage renal disease
- ejection fraction
- newly diagnosed
- public health
- primary care
- randomized controlled trial
- systematic review
- peritoneal dialysis
- emergency department
- patient reported outcomes
- risk assessment
- health information
- optical coherence tomography
- social media