Research involvement and engagement

Keyphrases

Publications

volume 10, number 1, 2024

Amanda Wurz, Kelsey Ellis, Julia Nordlund, Marie-Eve Carrier, Vanessa Cook, Amy Gietzen, Claire Adams, Elsa-Lynn Nassar, Danielle B Rice, Catherine Fortune, Genevieve Guillot, Tracy Mieszczak, Michelle Richard, Maureen Sauve, Brett D Thombs
Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews. Research involvement and engagement 10 (1) (2024)
Kerry Micklewright, Anne Killett, Gizdem Akdur, Priti Biswas, Pamela Blades, Lisa Irvine, Liz Jones, Julienne Meyer, Natalie Ravenscroft, Hilary Woodhead, Claire Goodman
Activity provider-facilitated patient and public involvement with care home residents. Research involvement and engagement 10 (1) (2024)
Corina Ryf, Léonie Hofstetter, Lauren Clack, Cesar A Hincapié
Involving patients and clinicians in the development of a randomised clinical trial protocol to assess spinal manual therapy versus nerve root injection for patients with lumbar radiculopathy: a patient and public involvement project to inform the SALuBRITY trial design. Research involvement and engagement 10 (1) (2024)
Cyleste C Collins, Mona Shediac-Rizkallah, Jacqueline Dolata, Erika Hood, Elodie Nonguierma, Daryl Thornton
"They should've talked to us more": lay health advisors' experiences with community-engaged hypertension research. Research involvement and engagement 10 (1) (2024)
Ellen Stewart, null null, null null, null null, Elizabeth Such
Evaluating participant experiences of Community Panels to scrutinise policy modelling for health inequalities: the SIPHER Consortium. Research involvement and engagement 10 (1) (2024)
Amanda Wurz, Kelsey Ellis, Julia Nordlund, Marie-Eve Carrier, Vanessa Cook, Amy Gietzen, Claire Adams, Elsa-Lynn Nassar, Danielle B Rice, Catherine Fortune, Genevieve Guillot, Tracy Mieszczak, Michelle Richard, Maureen Sauve, Brett D Thombs
Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews. Research involvement and engagement 10 (1) (2024)
Nicole Zhao, Allison M Cuthel, Owen Storms, Raina Zhang, Rebecca Liddicoat Yamarik, Jacob Hill, Regina Kaur, Kaitlyn Van Allen, Mara Flannery, Alex Chang, Frank Chung, Sumeet Randhawa, Isabel Castro Alvarez, Angela Young-Brinn, Constance L Kizzie-Gillett, Dawn Rosini, Eric D Isaacs, Ernest Hopkins, Garrett K Chan, Juanita Booker-Vaughns, Margaret Maguire, Martha Navarro, Neha Reddy Pidatala, Patrick Dunn, Pluscedia Williams, Robert Galvin, Romilla Batra, Sally Welsh, William Vaughan, Jean-Baptiste Bouillon-Minois, Corita R Grudzen
Advancing patient-centered research practices in a pragmatic patient-level randomized clinical trial: A thematic analysis of stakeholder engagement in Emergency Medicine Palliative Care Access (EMPallA). Research involvement and engagement 10 (1) (2024)
Kate Sturgeon, Ali Judd, Tom Burke, Caroline Foster, Diana M Gibb, Marthe Le Prevost, Warren Mhizha, Conor D Tweed
Disseminating the research findings from the adolescents and adults living with Perinatal HIV (AALPHI) study: an approach from young people living with HIV. Research involvement and engagement 10 (1) (2024)
Ellen Stewart, null null, null null, null null, Elizabeth Such
Evaluating participant experiences of Community Panels to scrutinise policy modelling for health inequalities: the SIPHER Consortium. Research involvement and engagement 10 (1) (2024)
Thomas Morel, Karlin Schroeder, Sophie Cleanthous, John Andrejack, Geraldine Blavat, William Brooks, Lesley Gosden, Carroll Siu, Natasha Ratcliffe, Ashley F Slagle
Correction to: The value of co-creating a clinical outcome assessment strategy for clinical trial research: process and lessons learnt. Research involvement and engagement 10 (1) (2024)
Linda Nguyen, Kinga Pozniak, Sonya Strohm, Jessica Havens, Claire Dawe-McCord, Donna Thomson, Connie Putterman, Dana Arafeh, Barb Galuppi, Alicia Via-Dufresne Ley, Shelley Doucet, Khush Amaria, Adrienne H Kovacs, Ariane Marelli, Ronen Rozenblum, Jan Willem Gorter, null null
Navigating meaningful engagement: lessons from partnering with youth and families in brain-based disability research. Research involvement and engagement 10 (1) (2024)
Pernille Christiansen Skovlund, Jeanette Finderup, Sanne Aabo, Flemming Jensen, Henning Søndergaard, Lotte Ørneborg Rodkjaer
Recommendations for successful involvement of patient partners in complex intervention research: a collaborative learning process. Research involvement and engagement 10 (1) (2024)
Jodie Crooks, Kate Flemming, Caroline Shulman, Emma Casey, Briony Hudson
Involving people with lived experience of homelessness in palliative and end of life care research: key considerations from experts in the field. Research involvement and engagement 10 (1) (2024)
Bella Wheeler, Oli Williams, Becki Meakin, Eleni Chambers, Peter Beresford, Sarah O'Brien, Glenn Robert
Exploring Elinor Ostrom's principles for collaborative group working within a user-led project: lessons from a collaboration between researchers and a user-led organisation. Research involvement and engagement 10 (1) (2024)
Jodie Crooks, Kate Flemming, Caroline Shulman, Emma Casey, Briony Hudson
Involving people with lived experience of homelessness in palliative and end of life care research: key considerations from experts in the field. Research involvement and engagement 10 (1) (2024)
Venkatesan Chakrapani, Vijayalakshmi Loganathan, Paromita Saha, Devi Leena Bose, Nabeela Khan, Tiara Aurora, Jyoti Narayan, Joyeeta Mukherjee, Saif Ul Hadi, Chitrangna Dewan
Engagement of vulnerable communities in HIV prevention research in India: a qualitative investigation. Research involvement and engagement 10 (1) (2024)
Nicole Zhao, Allison M Cuthel, Owen Storms, Raina Zhang, Rebecca Liddicoat Yamarik, Jacob Hill, Regina Kaur, Kaitlyn Van Allen, Mara Flannery, Alex Chang, Frank Chung, Sumeet Randhawa, Isabel Castro Alvarez, Angela Young-Brinn, Constance L Kizzie-Gillett, Dawn Rosini, Eric D Isaacs, Ernest Hopkins, Garrett K Chan, Juanita Booker-Vaughns, Margaret Maguire, Martha Navarro, Neha Reddy Pidatala, Patrick Dunn, Pluscedia Williams, Robert Galvin, Romilla Batra, Sally Welsh, William Vaughan, Jean-Baptiste Bouillon-Minois, Corita R Grudzen
Advancing patient-centered research practices in a pragmatic patient-level randomized clinical trial: A thematic analysis of stakeholder engagement in Emergency Medicine Palliative Care Access (EMPallA). Research involvement and engagement 10 (1) (2024)
Corina Ryf, Léonie Hofstetter, Lauren Clack, Cesar A Hincapié
Involving patients and clinicians in the development of a randomised clinical trial protocol to assess spinal manual therapy versus nerve root injection for patients with lumbar radiculopathy: a patient and public involvement project to inform the SALuBRITY trial design. Research involvement and engagement 10 (1) (2024)
Amanda Wurz, Kelsey Ellis, Julia Nordlund, Marie-Eve Carrier, Vanessa Cook, Amy Gietzen, Claire Adams, Elsa-Lynn Nassar, Danielle B Rice, Catherine Fortune, Genevieve Guillot, Tracy Mieszczak, Michelle Richard, Maureen Sauve, Brett D Thombs
Researcher and patient experiences of co-presenting research to people living with systemic sclerosis at a patient conference: content analysis of interviews. Research involvement and engagement 10 (1) (2024)
Thomas Morel, Karlin Schroeder, Sophie Cleanthous, John Andrejack, Geraldine Blavat, William Brooks, Lesley Gosden, Carroll Siu, Natasha Ratcliffe, Ashley F Slagle
Correction to: The value of co-creating a clinical outcome assessment strategy for clinical trial research: process and lessons learnt. Research involvement and engagement 10 (1) (2024)
Thomas Morel, Karlin Schroeder, Sophie Cleanthous, John Andrejack, Geraldine Blavat, William Brooks, Lesley Gosden, Carroll Siu, Natasha Ratcliffe, Ashley F Slagle
Correction to: The value of co-creating a clinical outcome assessment strategy for clinical trial research: process and lessons learnt. Research involvement and engagement 10 (1) (2024)
Ellen Stewart, null null, null null, null null, Elizabeth Such
Evaluating participant experiences of Community Panels to scrutinise policy modelling for health inequalities: the SIPHER Consortium. Research involvement and engagement 10 (1) (2024)
Kerry Micklewright, Anne Killett, Gizdem Akdur, Priti Biswas, Pamela Blades, Lisa Irvine, Liz Jones, Julienne Meyer, Natalie Ravenscroft, Hilary Woodhead, Claire Goodman
Activity provider-facilitated patient and public involvement with care home residents. Research involvement and engagement 10 (1) (2024)
Patricia Furlong, Ashish Dugar, Molly White
Patient engagement in clinical trial design for rare neuromuscular disorders: impact on the DELIVER and ACHIEVE clinical trials. Research involvement and engagement 10 (1) (2024)
Joanne Woodford, Christina Reuther, Johan Lars Ljungberg, Louise von Essen
Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol. Research involvement and engagement 10 (1) (2024)
Linda Nguyen, Kinga Pozniak, Sonya Strohm, Jessica Havens, Claire Dawe-McCord, Donna Thomson, Connie Putterman, Dana Arafeh, Barb Galuppi, Alicia Via-Dufresne Ley, Shelley Doucet, Khush Amaria, Adrienne H Kovacs, Ariane Marelli, Ronen Rozenblum, Jan Willem Gorter, null null
Navigating meaningful engagement: lessons from partnering with youth and families in brain-based disability research. Research involvement and engagement 10 (1) (2024)
Joanne Woodford, Christina Reuther, Johan Lars Ljungberg, Louise von Essen
Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol. Research involvement and engagement 10 (1) (2024)
Tatiana Ogourtsova, Miriam Gonzalez, Alix Zerbo, Frank Gavin, Keiko Shikako, Jonathan Weiss, Annette Majnemer
Lessons learned in measuring patient engagement in a Canada-wide childhood disability network. Research involvement and engagement 10 (1) (2024)
Bella Wheeler, Oli Williams, Becki Meakin, Eleni Chambers, Peter Beresford, Sarah O'Brien, Glenn Robert
Exploring Elinor Ostrom's principles for collaborative group working within a user-led project: lessons from a collaboration between researchers and a user-led organisation. Research involvement and engagement 10 (1) (2024)
Grace Gard, Jo Oakley, Kelsey Serena, Karla Gough, Michael Harold, Katya Gray, Helen Anderson, Judi Byrne, Jo Cockwill, Graeme Down, George Kiossoglou, Peter Gibbs
Co-designing a personalised care plan for patients with rectal cancer: reflections and practical learnings. Research involvement and engagement 10 (1) (2024)
Lisa Hartling, Sarah A Elliott, Annie Mabbott, Julie Leung, Kathleen Shearer, Chrissy Smith, Shannon D Scott
Four year evaluation of a parent advisory group to support a research program for knowledge translation in child health. Research involvement and engagement 10 (1) (2024)
Bella Wheeler, Oli Williams, Becki Meakin, Eleni Chambers, Peter Beresford, Sarah O'Brien, Glenn Robert
Exploring Elinor Ostrom's principles for collaborative group working within a user-led project: lessons from a collaboration between researchers and a user-led organisation. Research involvement and engagement 10 (1) (2024)
Lisa Hartling, Sarah A Elliott, Annie Mabbott, Julie Leung, Kathleen Shearer, Chrissy Smith, Shannon D Scott
Four year evaluation of a parent advisory group to support a research program for knowledge translation in child health. Research involvement and engagement 10 (1) (2024)
Krystina B Lewis, Maureen Smith, Dawn Stacey, Meg Carley, Ian D Graham, null null
Evaluation of an integrated knowledge translation approach used for updating the Cochrane Review of Patient Decision Aids: a pre-post mixed methods study. Research involvement and engagement 10 (1) (2024)
Cyleste C Collins, Mona Shediac-Rizkallah, Jacqueline Dolata, Erika Hood, Elodie Nonguierma, Daryl Thornton
"They should've talked to us more": lay health advisors' experiences with community-engaged hypertension research. Research involvement and engagement 10 (1) (2024)
Cyleste C Collins, Mona Shediac-Rizkallah, Jacqueline Dolata, Erika Hood, Elodie Nonguierma, Daryl Thornton
"They should've talked to us more": lay health advisors' experiences with community-engaged hypertension research. Research involvement and engagement 10 (1) (2024)
Nicole Zhao, Allison M Cuthel, Owen Storms, Raina Zhang, Rebecca Liddicoat Yamarik, Jacob Hill, Regina Kaur, Kaitlyn Van Allen, Mara Flannery, Alex Chang, Frank Chung, Sumeet Randhawa, Isabel Castro Alvarez, Angela Young-Brinn, Constance L Kizzie-Gillett, Dawn Rosini, Eric D Isaacs, Ernest Hopkins, Garrett K Chan, Juanita Booker-Vaughns, Margaret Maguire, Martha Navarro, Neha Reddy Pidatala, Patrick Dunn, Pluscedia Williams, Robert Galvin, Romilla Batra, Sally Welsh, William Vaughan, Jean-Baptiste Bouillon-Minois, Corita R Grudzen
Advancing patient-centered research practices in a pragmatic patient-level randomized clinical trial: A thematic analysis of stakeholder engagement in Emergency Medicine Palliative Care Access (EMPallA). Research involvement and engagement 10 (1) (2024)
Venkatesan Chakrapani, Vijayalakshmi Loganathan, Paromita Saha, Devi Leena Bose, Nabeela Khan, Tiara Aurora, Jyoti Narayan, Joyeeta Mukherjee, Saif Ul Hadi, Chitrangna Dewan
Engagement of vulnerable communities in HIV prevention research in India: a qualitative investigation. Research involvement and engagement 10 (1) (2024)
Corina Ryf, Léonie Hofstetter, Lauren Clack, Cesar A Hincapié
Involving patients and clinicians in the development of a randomised clinical trial protocol to assess spinal manual therapy versus nerve root injection for patients with lumbar radiculopathy: a patient and public involvement project to inform the SALuBRITY trial design. Research involvement and engagement 10 (1) (2024)
Kate Sturgeon, Ali Judd, Tom Burke, Caroline Foster, Diana M Gibb, Marthe Le Prevost, Warren Mhizha, Conor D Tweed
Disseminating the research findings from the adolescents and adults living with Perinatal HIV (AALPHI) study: an approach from young people living with HIV. Research involvement and engagement 10 (1) (2024)
Synneve Dahlin-Ivanoff, Isak Berge, Emmelie Barenfeld, Maria Haak, Qarin Lood
Research collaboration with older people as a matter of scientific quality and ethics: a focus group study with researchers in ageing and health. Research involvement and engagement 10 (1) (2024)
Sarah Mitchell, Nicola Turner, Kate Fryer, Jude Beng, Margaret E Ogden, Melanie Watson, Clare Gardiner, Joanne Bayly, Katherine E Sleeman, Catherine J Evans
A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research. Research involvement and engagement 10 (1) (2024)
Kerry Micklewright, Anne Killett, Gizdem Akdur, Priti Biswas, Pamela Blades, Lisa Irvine, Liz Jones, Julienne Meyer, Natalie Ravenscroft, Hilary Woodhead, Claire Goodman
Activity provider-facilitated patient and public involvement with care home residents. Research involvement and engagement 10 (1) (2024)
Synneve Dahlin-Ivanoff, Isak Berge, Emmelie Barenfeld, Maria Haak, Qarin Lood
Research collaboration with older people as a matter of scientific quality and ethics: a focus group study with researchers in ageing and health. Research involvement and engagement 10 (1) (2024)
Tatiana Ogourtsova, Miriam Gonzalez, Alix Zerbo, Frank Gavin, Keiko Shikako, Jonathan Weiss, Annette Majnemer
Lessons learned in measuring patient engagement in a Canada-wide childhood disability network. Research involvement and engagement 10 (1) (2024)
Linda Nguyen, Kinga Pozniak, Sonya Strohm, Jessica Havens, Claire Dawe-McCord, Donna Thomson, Connie Putterman, Dana Arafeh, Barb Galuppi, Alicia Via-Dufresne Ley, Shelley Doucet, Khush Amaria, Adrienne H Kovacs, Ariane Marelli, Ronen Rozenblum, Jan Willem Gorter, null null
Navigating meaningful engagement: lessons from partnering with youth and families in brain-based disability research. Research involvement and engagement 10 (1) (2024)
Synneve Dahlin-Ivanoff, Isak Berge, Emmelie Barenfeld, Maria Haak, Qarin Lood
Research collaboration with older people as a matter of scientific quality and ethics: a focus group study with researchers in ageing and health. Research involvement and engagement 10 (1) (2024)
Pernille Christiansen Skovlund, Jeanette Finderup, Sanne Aabo, Flemming Jensen, Henning Søndergaard, Lotte Ørneborg Rodkjaer
Recommendations for successful involvement of patient partners in complex intervention research: a collaborative learning process. Research involvement and engagement 10 (1) (2024)
Pernille Christiansen Skovlund, Jeanette Finderup, Sanne Aabo, Flemming Jensen, Henning Søndergaard, Lotte Ørneborg Rodkjaer
Recommendations for successful involvement of patient partners in complex intervention research: a collaborative learning process. Research involvement and engagement 10 (1) (2024)
Patricia Furlong, Ashish Dugar, Molly White
Patient engagement in clinical trial design for rare neuromuscular disorders: impact on the DELIVER and ACHIEVE clinical trials. Research involvement and engagement 10 (1) (2024)