Patient related outcome measures

Keyphrases

Publications

volume 14, 2023

Nadeem Kassam, Salim Surani, Kamran Hameed, Eric Aghan, Robert Mayenga, Iris Matei, Gijsberta Jengo, Fatma Bakshi, Hanifa Mbithe, James Orwa, George Udeani, Samina Somji
Magnitude, Distribution and Contextual Risk Enhancing Predictors of High 10-Year Cardiovascular Risk Among Diabetic Patients in Tanzania. Patient related outcome measures 14 (2023)
Lilla A Brody, Lily Kamalyan, Kayle Karcher, Lesley A Guarena, Alexis A Bender, Benjamin S McKenna, Anya Umlauf, Donald Franklin, Maria J Marquine, Robert K Heaton
NIH Toolbox Emotion Battery Findings Among People with HIV: Normative Comparisons and Clinical Associations. Patient related outcome measures 14 (2023)
Nadeem Kassam, Salim Surani, Kamran Hameed, Eric Aghan, Robert Mayenga, Iris Matei, Gijsberta Jengo, Fatma Bakshi, Hanifa Mbithe, James Orwa, George Udeani, Samina Somji
Magnitude, Distribution and Contextual Risk Enhancing Predictors of High 10-Year Cardiovascular Risk Among Diabetic Patients in Tanzania. Patient related outcome measures 14 (2023)
Nadine Maybaum, Salvador Rios-Martinez, Martin Johnson
Quantitative Global Survey Results of Acute Back Pain Sufferers Across Four Countries. Patient related outcome measures 14 (2023)
Alvaro Gomez, Yvonne Enman, Ioannis Parodis
Impact of Belimumab on Patient-Reported Outcomes in Systemic Lupus Erythematosus: Insights from Clinical Trials and Real-World Evidence. Patient related outcome measures 14 (2023)
Christian Espinoza-Vinces, Rafael Villino-Rodríguez, Ainhoa Atorrasagasti-Villar, Gloria Martí-Andrés, María-Rosario Luquin
Impact of Safinamide on Patient-Reported Outcomes in Parkinson's Disease. Patient related outcome measures 14 (2023)
Clifford A Reilly, Makenna L Rice, Dylan J Parker, Philip P Goodney, Jon D Lurie, Said A Ibrahim, Eric R Henderson
Acceptability and Feasibility of Delivering Decision Aids to Veterans for Management of Knee Osteoarthritis - A Pilot Study. Patient related outcome measures 14 (2023)
Nida Salman Yazdani, Kaniz Amna Haider, Amna Khan, Syed Ali Jaffar Zaidi, Akbar Rajani, Imran Nisar, Fyezah Jehan, Zahra Hoodbhoy
Pregnant Women's Experiences with Midwifery-Led Antenatal Care Services in Peri-Urban Communities in Karachi, Pakistan. Patient related outcome measures 14 (2023)
Alvaro Gomez, Yvonne Enman, Ioannis Parodis
Impact of Belimumab on Patient-Reported Outcomes in Systemic Lupus Erythematosus: Insights from Clinical Trials and Real-World Evidence. Patient related outcome measures 14 (2023)
Pål André Hegland, Ronette L Kolotkin, John Roger Andersen
Sensitivity for Change Analyses of the Patient-Reported Outcomes in Obesity (PROS) Questionnaire: A Prospective Cohort Study. Patient related outcome measures 14 (2023)
Rachel Campbell, Madeleine T King, Martin R Stockler, Yeh Chen Lee, Felicia T Roncolato, Michael L Friedlander
Patient-Reported Outcomes in Ovarian Cancer: Facilitating and Enhancing the Reporting of Symptoms, Adverse Events, and Subjective Benefit of Treatment in Clinical Trials and Clinical Practice. Patient related outcome measures 14 (2023)
Timothy Beukelman, Millie D Long, Rennie L Rhee, Michael D Kappelman, Peter A Merkel, William Benjamin Nowell, Jeffrey R Curtis, Sarah Ringold, Vincent Del Gaizo, Brian Price, Dianne G Shaw, Shilpa Venkatachalam, David Cuthbertson, Fenglong Xie, Xian Zhang, Jeffrey R Curtis
Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks. Patient related outcome measures 14 (2023)
Rachel Campbell, Madeleine T King, Martin R Stockler, Yeh Chen Lee, Felicia T Roncolato, Michael L Friedlander
Patient-Reported Outcomes in Ovarian Cancer: Facilitating and Enhancing the Reporting of Symptoms, Adverse Events, and Subjective Benefit of Treatment in Clinical Trials and Clinical Practice. Patient related outcome measures 14 (2023)
Shanlian Hu, De-Pei Wu, Jing Wu, Yabing Zhang, Mette Bøgelund, Johannes Pöhlmann, Richard F Pollock
Disutilities Associated with Intravenous Iron Infusions: Results from a Time Trade-off Survey and Diminishing Marginal Utility Model for Treatment Attributes in China. Patient related outcome measures 14 (2023)
Emma Grundtvig Gram, Jessica Malmqvist, Anders Heiberg Agerbeck, Frederik Handberg Juul Martiny, Anne Katrine Lykke Bie, John Brandt Brodersen
Methodological Quality of PROMs in Psychosocial Consequences of Colorectal Cancer Screening: A Systematic Review. Patient related outcome measures 14 (2023)
Asif Hameed Khan, Katherine Kosa, Lucia De Prado Gomez PharmD MSc, Diane Whalley, Siddhesh Kamat, Marci Clark
Content Validation of Patient-Reported Sleep Measures and Development of a Conceptual Model of Sleep Disturbance in Patients with Moderate-to-Severe, Uncontrolled Asthma. Patient related outcome measures 14 (2023)
Michael Chladek, Claire Burbridge, Elizabeth Gibbons, Tom Willgoss, Janice Smith, Susanne Clinch
Qualitative Exploration in Exit Interviews of Changes Observed in Clinical Trials for Individuals with Autism Spectrum Disorder Without Intellectual Disability. Patient related outcome measures 14 (2023)
Lilla A Brody, Lily Kamalyan, Kayle Karcher, Lesley A Guarena, Alexis A Bender, Benjamin S McKenna, Anya Umlauf, Donald Franklin, Maria J Marquine, Robert K Heaton
NIH Toolbox Emotion Battery Findings Among People with HIV: Normative Comparisons and Clinical Associations. Patient related outcome measures 14 (2023)
Asif Hameed Khan, Katherine Kosa, Lucia De Prado Gomez PharmD MSc, Diane Whalley, Siddhesh Kamat, Marci Clark
Content Validation of Patient-Reported Sleep Measures and Development of a Conceptual Model of Sleep Disturbance in Patients with Moderate-to-Severe, Uncontrolled Asthma. Patient related outcome measures 14 (2023)
Betelhem Mesfin, Alexander Mersha Demise, Mulu Shiferaw Asfaw, Freweyni Gebreegziabher, Fentaw Girmaw
The Effect of Armed Conflict on Treatment Interruption, Its Outcome and Associated Factors Among Chronic Disease Patients in North East, Amhara, Ethiopia, 2022. Patient related outcome measures 14 (2023)
Avery A Rizio, Kristen L McCausland, Michelle K Carty, Ansgar Conrad, Tiffany P Quock
Association Between Hematologic Response and Change in Health-Related Quality of Life Among Patients with Light-Chain (AL) Amyloidosis. Patient related outcome measures 14 (2023)
Lotte van der Kolk, Ellen Smit, Josée Bloemer, Lise Marit van Wijk
The PCQ-Infertility Revised: A New Digital Instrument to Measure Treatment Satisfaction of Fertility Patients. Patient related outcome measures 14 (2023)
Kristine Henderson Bissenbakker, Anne Møller, Alexandra Brandt Ryborg Jønsson, John Brandt Brodersen
Generating Items for Measuring Needs-Based Quality of Life and Self-Perceived Health Inequity in Patients with Multimorbidity: Development of the MultiMorbidity Questionnaire (MMQ). Patient related outcome measures 14 (2023)
Zhuowei Gong, Dayuan Lao, Fang Huang, Sirao Lv, Fengping Mao, Wen Huang
Risk Factors and Prognosis in Anti-NMDA Receptor Encephalitis Patients with Disturbance of Consciousness. Patient related outcome measures 14 (2023)
Meaghan O'Connor, Kristen Hsu, Lynne E Broderick, Kristen L McCausland, Kaitlin LaGasse, Sabrina Rebello, Michelle K White, Isabelle Lousada
The Transthyretin Amyloidosis - Quality of Life (ATTR-QOL) Questionnaire: Development of a Conceptual Model and Disease-Specific Patient-Reported Outcome Measure. Patient related outcome measures 14 (2023)
Emma Grundtvig Gram, Jessica Malmqvist, Anders Heiberg Agerbeck, Frederik Handberg Juul Martiny, Anne Katrine Lykke Bie, John Brandt Brodersen
Methodological Quality of PROMs in Psychosocial Consequences of Colorectal Cancer Screening: A Systematic Review. Patient related outcome measures 14 (2023)
Belete Muluadam Admassie, Biruk Adie Admass, Debas Yaregal Melesse
Incidence and Associated Factors of Postoperative Undesirable Anesthetic Outcomes Among Surgical Patients at Referral Hospitals in Amhara Region, Ethiopia: A Multi-Center Study. Patient related outcome measures 14 (2023)
Lauren Nelson, Steven W Ing, Mishaela R Rubin, Jia Ma, Susan Martin, Rohini Sen, Olulade Ayodele
Psychometric Analysis of the Patient-Reported Hypoparathyroidism Symptom Diary Symptom Subscale Using Data from Two Clinical Trials. Patient related outcome measures 14 (2023)
Nadine Maybaum, Salvador Rios-Martinez, Martin Johnson
Quantitative Global Survey Results of Acute Back Pain Sufferers Across Four Countries. Patient related outcome measures 14 (2023)
Nega Getachew Tegegne, Demeke Yilkal Fentie, Biresaw Ayen Tegegne, Belete Muluadam Admassie
Incidence and Predictors of Mortality Among Patients with Traumatic Brain Injury at University of Gondar Comprehensive Specialized Hospital, Northwest Ethiopia: A Retrospective Follow-Up Study. Patient related outcome measures 14 (2023)
Andrew Campbell, Avery A Rizio, Kristen L McCausland, Serban Iorga, Glorian P Yen, Jincy Paulose, Soyon Lee
The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children's Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises. Patient related outcome measures 14 (2023)
Clifford A Reilly, Makenna L Rice, Dylan J Parker, Philip P Goodney, Jon D Lurie, Said A Ibrahim, Eric R Henderson
Acceptability and Feasibility of Delivering Decision Aids to Veterans for Management of Knee Osteoarthritis - A Pilot Study. Patient related outcome measures 14 (2023)
Nida Salman Yazdani, Kaniz Amna Haider, Amna Khan, Syed Ali Jaffar Zaidi, Akbar Rajani, Imran Nisar, Fyezah Jehan, Zahra Hoodbhoy
Pregnant Women's Experiences with Midwifery-Led Antenatal Care Services in Peri-Urban Communities in Karachi, Pakistan. Patient related outcome measures 14 (2023)
Susanne Clinch, Stacie Hudgens, Elizabeth Gibbons, Tom Willgoss, Janice Smith, Ela Polek, Claire Burbridge
Quantitative and Qualitative Exploration of Meaningful Change on the Vineland Adaptive Behavior Scales (Vineland™-II) in Children and Adolescents with Autism Without Intellectual Disability Following Participation in a Clinical Trial. Patient related outcome measures 14 (2023)
Carlo Antozzi, Renato Mantegazza
Impact of Ravulizumab on Patient Outcomes and Quality of Life in Generalized Myasthenia Gravis. Patient related outcome measures 14 (2023)
Lidwine B Mokkink, Iris Eekhout, Maarten Boers, Cees P M van der Vleuten, Henrica C W de Vet
Studies on Reliability and Measurement Error of Measurements in Medicine - From Design to Statistics Explained for Medical Researchers. Patient related outcome measures 14 (2023)
Avery A Rizio, Michelle K White, Anita D'Souza, Kristen Hsu, Paula Schmitt, Tiffany P Quock, James Signorovitch, Isabelle Lousada, Vaishali Sanchorawala
Health-Related Quality of Life Instruments for Clinical Trials in AL Amyloidosis: Report from the Amyloidosis Forum HRQOL Working Group. Patient related outcome measures 14 (2023)
Lilla A Brody, Lily Kamalyan, Kayle Karcher, Lesley A Guarena, Alexis A Bender, Benjamin S McKenna, Anya Umlauf, Donald Franklin, Maria J Marquine, Robert K Heaton
NIH Toolbox Emotion Battery Findings Among People with HIV: Normative Comparisons and Clinical Associations. Patient related outcome measures 14 (2023)

volume 13, 2022

Jennifer Quinn, Kathleen A Delaney, Wing Yen Wong, Wolfgang A Miesbach, Monika Bullinger
Psychometric Validation of the Haemo-QOL-A in Participants with Hemophilia A Treated with Gene Therapy. Patient related outcome measures 13 (2022)
Christoph Schnelle, Mark A Jones
Characteristics of Exceptionally Good Doctors: A Protocol for a Cross-Sectional Survey of Adults. Patient related outcome measures 13 (2022)
David Cella, Ron D Hays
A Patient Reported Outcome Ontology: Conceptual Issues and Challenges Addressed by the Patient-Reported Outcomes Measurement Information System ® (PROMIS ® ). Patient related outcome measures 13 (2022)
Claudio Rodrigues Leles, Jésio Rodrigues Silva, Thalita Fernandes Fleury Curado, Martin Schimmel, Gerald John McKenna
The Potential Role of Dental Patient-Reported Outcomes (dPROs) in Evidence-Based Prosthodontics and Clinical Care: A Narrative Review. Patient related outcome measures 13 (2022)
Inger Schou-Bredal, Elin Myklebust Sørensen, Kari Heitmann Kraglund, Vibeke Schou Jensen, Sigrunn Drageset
Development of the Breast Cancer Survivors Symptom Checklist for Use in Follow-Up Multidisciplinary Appointments. Patient related outcome measures 13 (2022)
Eva Zwaan, Elena S Cheung, Alexander IJsselmuiden, Carlo Holtzer, Ton Schreuders, Marcel Kofflard, Marco Alings, J Henk Coert
Predictive Value of the (Quick) DASH Tool for Upper Extremity Dysfunction Following Percutaneous Coronary Intervention. Patient related outcome measures 13 (2022)
William Valentine, Kirsi Norrbacka, Kristina Secnik Boye
Evaluating the Impact of Therapy on Quality of Life in Type 2 Diabetes: A Literature Review of Utilities Associated with Treatment-Related Attributes. Patient related outcome measures 13 (2022)
Colin R Grove, Wagner Henrique Souza, Patricia L Gerend, Cynthia A Ryan, Michael C Schubert
Patients' Experiences with Management of Benign Paroxysmal Positional Vertigo: Insights from the Vestibular Disorders Association Registry. Patient related outcome measures 13 (2022)
Nitika Sanger, Balpreet Panesar, Michael Dennis, Tea Rosic, Myanca Rodrigues, Elizabeth Lovell, Shuling Yang, Mehreen Butt, Lehana Thabane, Zainab Samaan
The Inclusion of Patients' Reported Outcomes to Inform Treatment Effectiveness Measures in Opioid Use Disorder. A Systematic Review. Patient related outcome measures 13 (2022)
Brian D Moseley, Shaloo Gupta, Nate Way, Jonathon Wright, John C Rowland, Victoria E Barghout, Feride Frech, Craig Plauschinat
Patient-Reported Outcome Measures in Adult Patients Diagnosed with Epilepsy Being Treated with Perampanel. Patient related outcome measures 13 (2022)
Jacek A Kopec
How to Improve Interpretability of Patient-Reported Outcome Measures for Clinical Use: A Perspective on Measuring Abilities and Feelings. Patient related outcome measures 13 (2022)
John Soper, Islam Sadek, Alyson Urniasz-Lippel, Deborah Norton, Marina Ness, Ruben A Mesa
Patient and Caregiver Insights into the Disease Burden of Myelodysplastic Syndrome. Patient related outcome measures 13 (2022)