Hadley Stevens Smith (Hadley S Smith)

Publication Activity (10 Years)

Years Active: 2019-2024
Publications (10 Years): 24

Top Topics

Pulmonary Embolism

Top Venues

Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation

European journal of human genetics : EJHG

Genetics in medicine : official journal of the American College of Medical Genetics

Health affairs scholar

This page only lists publications with an associated author ORCID identifier.

Publications

Hadley Stevens Smith, Michael Leo, Katrina Goddard, Kristin Muessig, Frank Angelo, Sara Knight, Simon Outram, Nicole R Kelly, Christine Rini
Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Hadley Stevens Smith, Michael Leo, Katrina Goddard, Kristin Muessig, Frank Angelo, Sara Knight, Simon Outram, Nicole R Kelly, Christine Rini
Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (6) (2024)
Hadley Stevens Smith, Michael Leo, Katrina Goddard, Kristin Muessig, Frank Angelo, Sara Knight, Simon Outram, Nicole R Kelly, Christine Rini
Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (6) (2024)
Deborah A Marshall, Nicolle Hua, James Buchanan, Kurt D Christensen, Geert W J Frederix, Ilias Goranitis, Maarten J IJzerman, Jeroen P Jansen, Tara A Lavelle, Deirdre Weymann, Hadley Stevens Smith, Wendy J Ungar, Deirdre Weymann, Sarah Wordsworth, Kathryn A Phillips
Paving the path for implementation of clinical genomic sequencing globally: Are we ready? Health affairs scholar 2 (5) (2024)
Hadley Stevens Smith, Michael Leo, Katrina Goddard, Kristin Muessig, Frank Angelo, Sara Knight, Simon Outram, Nicole R Kelly, Christine Rini
Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 33 (6) (2024)
Hadley Stevens Smith, Michael Leo, Katrina Goddard, Kristin Muessig, Frank Angelo, Sara Knight, Simon Outram, Nicole R Kelly, Christine Rini
Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Deborah A Marshall, Nicolle Hua, James Buchanan, Kurt D Christensen, Geert W J Frederix, Ilias Goranitis, Maarten J IJzerman, Jeroen P Jansen, Tara A Lavelle, Deirdre Weymann, Hadley Stevens Smith, Wendy J Ungar, Deirdre Weymann, Sarah Wordsworth, Kathryn A Phillips
Paving the path for implementation of clinical genomic sequencing globally: Are we ready? Health affairs scholar 2 (5) (2024)
Hadley Stevens Smith, Michael Leo, Katrina Goddard, Kristin Muessig, Frank Angelo, Sara Knight, Simon Outram, Nicole R Kelly, Christine Rini
Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Hadley Stevens Smith, Michael Leo, Katrina Goddard, Kristin Muessig, Frank Angelo, Sara Knight, Simon Outram, Nicole R Kelly, Christine Rini
Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Hadley Stevens Smith, Michael Leo, Katrina Goddard, Kristin Muessig, Frank Angelo, Sara Knight, Simon Outram, Nicole R Kelly, Christine Rini
Measuring health-related quality of life in children with suspected genetic conditions: validation of the PedsQL proxy-report versions. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2024)
Emily S Bonkowski, Hadley Stevens Smith
The Other Side of the Self-Advocacy Coin: How For-Profit Companies Can Divert the Path to Justice in Rare Disease. The American journal of bioethics : AJOB 23 (7) (2023)
Hadley Stevens Smith, Emily S Bonkowski, Madison R Hickingbotham, Raymond Belanger Deloge, Stacey Pereira
Framing the Family: A Qualitative Exploration of Factors That Shape Family-Level Experience of Pediatric Genomic Sequencing. Children (Basel, Switzerland) 10 (5) (2023)
Hannah G Hoban, Tiffany A Yip, Joanna C Chau, Jeannette T Bensen, Lauren R Desrosiers, Candice R Finnila, Lucia A Hindorff, Nicole R Kelly, Frances L Lynch, Bradley A Rolf, Hadley Stevens Smith, Melissa P Wasserstein, Kristen Hassmiller Lich
The motivation and process for developing a consortium-wide time and motion study to estimate resource implications of innovations in the use of genome sequencing to inform patient care. Clinical and translational science (2023)
Hadley Stevens Smith, Clarissa E Sanchez, Ronald Maag, Alexandria Buentello, David R Murdock, Ginger A Metcalf, Trevor D Hadley, Daniel L Riconda, Eric Boerwinkle, Xander H T Wehrens, Christie M Ballantyne, Richard A Gibbs, Amy L McGuire, Stacey Pereira
Patient and Clinician Perceptions of Precision Cardiology Care: Findings From the HeartCare Study. Circulation. Genomic and precision medicine (2022)
Hadley Stevens Smith, Emily S Bonkowski, Raymond Belanger Deloge, Amanda M Gutierrez, Alva M Recinos, Tara A Lavelle, David L Veenstra, Amy L McGuire, Stacey Pereira
Key drivers of family-level utility of pediatric genomic sequencing: a qualitative analysis to support preference research. European journal of human genetics : EJHG (2022)
Chaya N Murali, Seema R Lalani, Mahshid S Azamian, Christina Y Miyake, Hadley Stevens Smith
Quality of life, illness perceptions, and parental lived experiences in TANGO2-related metabolic encephalopathy and arrhythmias. European journal of human genetics : EJHG 30 (9) (2022)
Meghan C Halley, Hadley Stevens Smith, Euan A Ashley, Aaron J Goldenberg, Holly K Tabor
A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States. Nature genetics 54 (3) (2022)
Hadley Stevens Smith, Amy L McGuire, Eve Wittenberg, Tara A Lavelle
Family-level impact of genetic testing: integrating health economics and ethical, legal, and social implications. Personalized medicine 18 (3) (2021)
Hadley Stevens Smith, Stephanie R Morain
Appropriate Care for Adolescent Eating Disorders in Isolating and Disruptive Times. Journal of cognitive psychotherapy 35 (3) (2021)
Hadley Stevens Smith, Stephanie R Morain, Jill Oliver Robinson, Isabel Canfield, Janet Malek, Caryn Kseniya Rubanovich, Cinnamon S Bloss, Sara L Ackerman, Barbara Biesecker, Kyle B Brothers, Crispin N Goytia, Carol R Horowitz, Sara J Knight, Barbara Koenig, Stephanie A Kraft, Simon Outram, Christine Rini, Kelly J Shipman, Margaret Waltz, Benjamin Wilfond, Amy L McGuire
Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development. The patient (2021)
Gabriel Lázaro-Muñoz, Laura Torgerson, Hadley Stevens Smith, Stacey Pereira
Perceptions of best practices for return of results in an international survey of psychiatric genetics researchers. European journal of human genetics : EJHG 29 (2) (2020)
Caryn Kseniya Rubanovich, Hadley Stevens Smith, Cinnamon S Bloss
Commentary on the development of the Clinician-reported Genetic testing Utility InDEx (C-GUIDE). Genetics in medicine : official journal of the American College of Medical Genetics 22 (3) (2020)
Hadley Stevens Smith, John M Swint, Seema R Lalani, Marcia C de Oliveira Otto, Jose-Miguel Yamal, Heidi V Russell, Brendan H Lee
Exome sequencing compared with standard genetic tests for critically ill infants with suspected genetic conditions. Genetics in medicine : official journal of the American College of Medical Genetics 22 (8) (2020)
Hadley Stevens Smith, Heidi V Russell, Brendan H Lee, Stephanie R Morain, null null
Using the Delphi method to identify clinicians' perceived importance of pediatric exome sequencing results. Genetics in medicine : official journal of the American College of Medical Genetics 22 (1) (2019)